Lillian Grace Ball was born in 2013 with a very rare, complex disease known as Autosomal Recessive Polycystic Kidney Disease (ARPKD). The disease is a lifelong diagnosis in which those afflicted fight daily to maintain blood pressure levels, proper nutrition, and most importantly liver & kidney functions. The regular maintenance requires numerous on-going medications, medical supplies, lab testing & monitoring, imaging, & specialist appointments. The ‘Hope for Lillian Grace’ foundation was created as a tax-exempt Florida 501(c)(3) organization to help support the Ball family & others with these on-going costs associated with ARPKD. Lillian Grace fights every day.